Saturday, April 01, 2017

Hello!


How happy I am to be back at my blog! For the last few months I've been unable to include photos and that's very much cramped my style of communication here. But as of this morning, it looks like that problem is fixed. So my first update is my current location.

1. JB and I are staying on the bay in Provincetown, while our house is being renovated. This 3 months away from home, two miles down the street, means that we are waking up to sunrises like this every morning, each day watching the flow of the tides and the bounce of light off the water. 

It has been restorative. It's so lovely. Thank you to the universe for offering up an affordable rental that is perfect in every way.


2. #whynotdevin: at the end of January, a 6 year old little boy who is the son of my daughter's good friend Christine was out of the blue found to have a cancer called DIPG. Its location on the brainstem means that there is no treatment, no cure, no survival. In 40 years, not one child of the 200-300 kids each year in the USA has survived more than two years. The average life span with DIPG is 9 months.

Something remarkable has happened with Devin and his family. At first his parents asked, "Why Devin?" Then, as they refused to accept the fact that there is no hope and he will die, they asked, "Someone has the be the first one. Why not Devin?"

They, my daughter Jessica, and now many many others, started a national campaign to raise awareness and research funding for DIPG and to save Devin's life. Google or Facebook whynotdevin and you'll see what is happening. The fight has gone viral. Please help with prayers, wishes, donations. The tumor is aggressive and time is critical. We are truly manifesting that Devin will survive and thrive.


3. The renovation of our house: it is a much larger project that we ever imagined. New foundation, new shingling, new electric, new kitchen, new bath, new roof, upgraded windows and insulation and of course, all kinds of fun shopping and planning and designing.  It's been scary financially but JB and I are willing to let our knees knock as long as we don't jump in blind. 


5. Grandchildren: Last June, in the panic of Jessica's cancer (mis)diagnosis, we quickly rented a studio apartment so I could help with the kids and help however else needed. The little one room apt has been a godsend because our grand kids can come and stay and play. Here we made flowers with 5 year old Logan and he taped a flower garden to the picture window. 

I am in love with these kids. I love that I am lucky enough to have children whopping up my life.


6. And finally, TADA: if vision becomes reality, this will be our new Cape Cod kitchen. To say we are excited is a vast understatement. With luck, the whole renovation will be done by mid May.

7. And one more finally: my book manuscript is done. With the help of a few trusted readers, I'm in the revision and editing stage, hoping to begin shopping for an agent or publisher in a month or two.

All in all, I'm in good shape. Excited. Curious. Grateful. I say this with recognition that the world is 50% terrible; that the USA president is dangerous; that the age of Aquarius is in hiding. 

love
kj

Wednesday, March 01, 2017

Here I Am

I don't have pictures. But I can tell you that I am sitting on a couch in a rented vacation apartment watching seagulls fly over the bay, right in front of me through a sliding glass door. I will wake up to the sight of a glorious sunrise also right in front of me for another two months, until the renovation of our currently uninhabitable house is complete.

I can tell you that my partner JB has had a hell of a time with anxiety for many months and we are finally seeing some daylight. Every day she battles and her tools are finally working.

I can also tell you that my daughter Jess has a very good friend who like her also has 4 children and the youngest of her four boys, Devin, age 6, has been suddenly shockingly diagnosed with DIPG. It is a cancer at the brainstem with a zero survival rate. Zero. Not one child has survived longer than 2 years, and it could be 8 months or less. My daughter has mobilized to help Devin and his family and this is no small matter. In three weeks, a statement has been made: "Somebody has to be the first." 

And the answer has gone viral: #whynotdevin 

You can find Devin and his story there on Facebook. He's been on the news and well wishes come from everywhere and he's taken root in my heart. I'm not alone. Please pray for him, send him a card, help with GoFundMe, and pray again for the miracle he deserves. If you know the Pope, please ask him to pray too!

I have plenty more to catch up on here, but I think for now I'll leave it at #whynotdevin. 

I hope all is well in the world of each of you, barring unreal politics. I have finished my book and am editing the manuscript. It is a joyous feeling.

Love
kj